Resources

Mesothelioma patients and their families always let us know when they discover a helpful website and we love sharing them with you. Have you found any interesting websites?  Please contact info@phlbi.org and let us know!


Cancer Support Organizations and Resources

American Lung Association

American Society of Clinical Oncology

American Cancer Society

 

www.lung.org

www.cancer.net

www.cancer.org
1-800-ACS-2345

Association of Cancer Online Resources (ACOR) www.acor.org
Cancer Information and Counseling Line (CICL)
Free professional counseling on an individual
basis or in facilitated support groups
www.cancercare.org/get_help/counseling.php
Toll-free: 1-765-525-3777 (M-F, 8AM-5PM, Mountain Time, 1 hour ahead of Pacific Time)
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Major Cancer Treatment Centers

 
Memorial Sloan-Kettering Cancer Center 1275 York Avenue New York, NY 10065
800-525-2225
www.mskcc.org
   
The University of Texas MD Anderson Cancer Center 1515 Holcombe Blvd Houston, TX 77030
1-877-MDA-6789
www.mdanderson.org
   
H. Lee Moffitt Cancer Center & Research Institute 12902 Magnolia Drive Tampa, FL 33612
1-888-MOFFITT (1-888-663-3488)
www.moffitt.org
   
Mayo Clinic (Arizona) 13400 East Shea Blvd. Scottsdale, AZ 85259
480-301-8000
www.mayoclinic.org/arizona

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Hospice* and Palliative** Care Organizations

* Hospice: A philosophy of care. The hospice philosophy recognizes death as the final stage of life and seeks to enable patients to continue an alert, pain-free life so that their last days may be spent with dignity and quality of life.

** Palliative Care: Medical care/treatment that focuses on reducing the severity of symptoms, rather than trying to provide a cure. The goal is to prevent and relieve suffering and to improve quality of life for people facing serious illness.

 

National Hospice and Palliative Care Organization www.nhpco.org
  Established in 1978, the NHPCO is a nonprofit organization whose mission is advocacy for the rights of terminally ill Americans. NHPCO is the largest nonprofit membership organization devoted exclusively to the promotion of hospice care in America. In addition to providing informational and educational materials to members, NHPCO provides information and referrals to the public.
 
Hospice Link www.hospiceworld.org
  An organization that maintains a computerized database and up-to-date directory of all hospice and palliative care programs in the United States and provides general information about the principles and practices of good hospice and palliative care.The national toll‑free telephone number is 800‑331‑1620. HOSPICELINK is a service of the Hospice Education Institute, an independent non‑profit organization founded in 1985.
  Sanctuary Hospice                                                                                sanctuaryhospice.com 

This organization is dedicated to serving the community,  patients, and families with a total commitment to excellence in Hospice care, regardless of ability to pay. They offer nursing care, social work services, grief counselling,  spiritial care, and medical equioment.

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Nutrition for Cancer Patients:

American Institute for Cancer Research
Fosters research on diet and cancer prevention, interprets the evidence, and educates the public about the results.
www.aicr.org
   
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Support Groups:

The Wellness Community  1.888.793.WELL
www.thewellnesscommunity.org
Cancer Support Community 888-GILDA-4-U
cancersupportcommunity.org
Managing Cancer And Career (for women)
Provides information and support to help working women with cancer continue to work during and after treatment.
www.cancerandcareers.org
   
Cancer Hope Network www.CancerHopeNetwork.org
  Cancer Hope Network is a not-for-profit organization that provides free and confidential one-on-one support to cancer patients and their families.  We provide that support by matching cancer patients and/or family members with trained volunteers who have themselves undergone and recovered from a similar cancer experience.Through this matching process, we strive to provide support and hope, to help patients and family members look beyond the diagnosis, cope with treatment, and start living life to its fullest once again.  In short, we strive to make a difference in their fight against cancer.
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Advocacy:

The Asbestos Disease Awareness Organization www.asbestosdiseaseawareness.org
  Co-founded by Linda Reinstein, activist, fighting for a total, worldwide ban of asbestos, wife of malignant mesothelioma patient Alan Reinstein (1939-2006)
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Medical-Related Travel

Air Care Alliance 1515 E. 71st St., Ste 312, Tulsa, OK  74136
(888) 260-9707
www.aircareall.org
   
AirLifeLine 50 Fullerton Court, Ste. 200, Sacramento, CA 95825
(877) AIRLIFE
www.airlifeline.org
Angel Flight America
Over 1,500 private pilots donate time, aircraft and fuel free of charge for ambulatory patients who cannot afford the costs of travel to medical facilities. Must meet qualification requirements.
 (800) 446-1231
Corporate Angel Network Westchester County Airport, One Loop Road, White Plains, NY 10604
(866) 328-1313
www.corpangelnetwork.org
National Patient Travel Center
Administered by Mercy Medical Airlift, a national charity transportation and hospitality service for those who must travel long distances for medical treatment. Free or discounted rate
 (800)296-1217
www.cancerpatienttravel.com
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Additional Reading and Information:

Free online cancer library:www.nlm.nih.gov

Informative website advocating a complete ban of asbestos:www.banasbestos.us

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